CF Trust Public Affairs Officer, England (North)
The public affairs officer replaces the previous role of expert patient adviser. The public affairs officers all have cystic fibrosis and their role is to campaign on CF related issues that matter to you! We want to get cystic fibrosis on the political agenda to ensure that key issues are addressed. Recent examples of this include transplantation, new treatments and the provision of CF services. I also continue to work with the York team to help the development of the adult CF service. Get involved! You could write to your local MP, signing a petition or even just help to raise awareness of CF. Please contact me on twitter at @lbeswickcft or at firstname.lastname@example.org for more details
Public affairs officers can't give individual or personal advice about CF. The York adult CF team are always here for that (email@example.com) 01904 725601 or you can phone the CF trust helpline on 0300 373 1000.