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York Adult Cystic Fibrosis Unit


There comes a time when you need the care of a team specialising in adults with CF, and the period as you move through to the adult
service is called 'transition'. This usually happens between the ages of
16 and 18 years, but your paediatric team may have been talking about
this with you for sometime before this.

We understand that leaving the Cystic Fibrosis team in the paediatric
unit and getting to know a new set of people and a new place can be
daunting. If you have already been through the York or Scarborough
paediatric service, you may already know a number of faces and a bit
about how the adult clinics work. People join the York Adult CF Unit
from a number of different routes, and we want to make that process
as easy as possible for you.

You may already have seen our newsletter, and you've got to our website.
Some of the team may have already come along to your old clinic and
met you there. We are also very happy to organise individual tours of
the outpatient department and the ward, on your own or with your
parents, if you would like.

Once you decide that you want your adult CF care to be provided by
us, your paediatrician usually writes a letter with a summary of your
clinical history, and we'll arrange an appointment for you to come to a
clinic and meet the team. If you have specific questions, please write
them down and bring them with you, or contact us on the telephone or
by email.

The Adult Cystic Fibrosis team will work with you to make sure that you
are able to identify your medications and treatments for Cystic Fibrosis,
and describe how your health has been since the last clinic visit or
hospitalisation. We recognize that initially, some of you may still wish to
attend clinic with a parent and have them involved more closely with
your care. We also hope to support you in becoming independent with
the management of your Cystic Fibrosis.